Sunday, August 1, 2010
Humiliation = motivation?
Saturday, July 31, 2010
Our weekend
.... building lego
Friday, July 30, 2010
The "before" pictures....
Saturday, July 24, 2010
Just an update...
Well almost two weeks in and there are mixed reports. On the sleep front there has been a miraculous turn around and he is now sleeping between 8 and 10 hours a night and boy does it show. My little man, who for years has had dark purple shadows under his eyes, is waking up clear eyed and bright faced almost every morning! We are in a good routine now where he takes his meds at 7pm and then has a bath and reads to me and then normally he's asleep between 8 and 8:30. None of this midnight nonsense. For the first few nights I honestly didn't know what to do with myself. Interestingly enough, I didn't give him meds one night as we went out for dinner with my folks and I didn't want him nodding off at the dinner table. We were out from 6pm-9pm then got home and all went to bed - I checked on him at 01:30am and he was wide awake.
Not such good news on the mood stabilising drug front. He's had up days, down days, inbetween days. This was not the plan. There have been massive issues with behaviour at school and they have seen an aggressive, angry, mean side of thim that previously had been under control. Crisis talks with the school and our behaviour therapist and it's a wait and see approach. Fingers crossed the next week or so goes well!
As for me - well between work & kids there isn't much time for anything else. Would love to have some crafty things to share but there just isn't time lately - I'm living vicariously through buttontree lane, kuka and knitting sprout with their sewing/cooking/knitting achievements!
Tuesday, July 13, 2010
Fork in the road
During the assessment Izaak was his usual combative, defiant, non-compliant self. It was tedious. Anyway, the assessment basically showed all the things that I knew about him as well as a few extras. He has too much cranial pressure. And he has auditory processing issues. The cranial pressure is being worked on by a local osteopath who has made some interesting observations about my little man. His hips are not aligned and as a result his neck is compensating. We are progressing well and will see him weekly for a while to see if we can get it sorted out. Back to The Extra Lesson though - they recommend an auditory program to help him with his auditory issues which I'm okay with - until I heard the cost is upwards of $1000.00. I don't want to sound like a stingy parent and I do have the funds to cover the cost of this treatment but I am extremely wary of shelling out that sort of cash on a program that doesn't have main stream science or the ASD community behind it. This is along the 'alternative' therapies stream and while I am willing to try almost anything to help my little boy, I'm not sure that it is really the best option given that kind of money would buy us almost 20 occupational therapy sessions.
So totally opposite to that philosophy - we went to see the paediatrician yesterday afternoon who couldn't believe that we had made it this far without medications. He has prescribed Izaak a mood stabilising drug and a sedative. Given that he has really poor sleep patterns I'm all for the later - he goes to bed between 7:30 - 8:30 and at 11:30-midnight is still wide awake. So tonight I gave him the first dose at 7:30 and by 8:20 he was sound asleep. Amazing.
Although it's working (well it's only night one so I'm cautious of saying that but after so many of unsettled nights, even one is 'working'!!) I'm struggling with the social stigma and judgements of people in regards to medicating my eight year old. Effectively I am giving my child psych drugs. I don't like how that fits, how it feels but I am coming around to the fact that I have to do what is best for him. As the paed and my family have all said - there is potential that is being hid away behind all the behavioural issues. Hopefully, the medication plan will lessen the behaviours so we can get more of the learning in. Tonight he read me two home readers that I thought were at the level he needed. He read both without missing a single word. I need to get over myself. If only it were that easy!
Wednesday, June 30, 2010
Adventures - day one
We continued onto Albury/Wodonga and stayed there for the night after having some delicious pasta at a little place we found in a side street near the city. It took forever for the kidlets to get to sleep - emotions and excitement were at a high point. Finally after looking at the maps and talking about our plans a quiet settled through the van and we all got a well deserved rest!
Tuesday, June 15, 2010
Making do
Fruit is a big issue in our house - the kids either demolish the lot within a day or two of our shopping day or it gets to the end of the week and very little has been eaten. Last night I was wondering around the house at about 8pm having that niggling snack-need feeling when I had a bright idea. Using the apples that had been sitting in the fruit bowl for a week I stewed them up and then found a recipe for a crumble topping in one of my favourite books. No piccies - the result was rapidly disappearing and to be honest, it wasn't pretty. Ugly? Yep Tasty? Absolutely!
A few weeks ago we were lucky enough to be the recipients of a home grown pumpkin but given that neither of the kids are keen on soups and I really didn't have any other good ideas to make with it the said pumpkin has been sitting and waiting. Tonight we are having roasted pumpkin & creamy spaghetti. Not sure if the vision in my head will be what turns out on the plate but we'll see what happens. It's amazing to really sit down and evaluate the food situation and see exactly how much we waste or misuse. I am here to publicly declare that from yesterday until Sunday (departure day) I will not be spending a single cent on food (or anything else for that matter!) - we have enough in the freezer & pantry to make it through, more than half a tank of petrol in the car and a new found will for saving money!
As a side note blogger recently discovered a blog of mine that I started AGES ago - it's so funny to look back. It was almost like another life back then. Anyway, if you want to have a look it's here. Pumpkin smells delish so I'm off to create an either perfect or perky pasta! Wish me luck!
Thursday, June 10, 2010
We're all booked & paid...
Later on this month, the kidlets and I will be heading up to Sydney to pick up one of these....
Which we will use to drive around this....
Before we finally head home on one of these...
Needless to say we are SUPER DOOPER excited about it all !!!Thursday, June 3, 2010
Snotland
Son has respiratory infection in the lower bases of both lungs.
Daughter has same in upper airways.
Me? I've got tonsilitis, ear infection & respiratory infection.
This sucks. Bad.
Wednesday, January 27, 2010
New chapters
He is anxious about going back to school tomorrow and it's times like this that I wish I could take it all away - take away the sleeplessness, take away the yukky feeling in his tummy. I can't though and I've come to accept that ;-( According to our behaviour therapist year three is often make or break and is, statistically, the year that main streaming will either work or it won't. We are hoping that we'll be in the former rather than later camp but only time will tell.
and the little lady starts preschool - seen here meeting "Boris", a friends bearded dragon...
She is *so* ready to start preschool and is eager to learn writing and reading although is somewhat upset that there isn't any homework!! I feel like a whirlwind of emotions with her. I'm sad that she's starting preschool because it's such a developmental step into the 'big kid' world but at the same time I'm loving the little girl that she's becoming. Her temper is there but seems to be simmering rather than exploding these days and I feel closer to her than ever before.
As for me, I'm embarking on new adventures, opening new chapters both professionally and personally. Professionally there is just two weeks until I start my new job which I am thrilled with. Personally, I'm starting to plan our first 'family' weekend away as things go from strength to strength with TOH.
Monday, January 18, 2010
Introducing...
Sunday, January 17, 2010
My perfect Sunday is...
... dropping off 4 black bags to the Salvos
... sending yarn to a new house where it is sure to be loved and used ;-) and to see a lovely lady who is gentle and kind with my children and who has a record player - too cool!
... seeing another friend and dropping off fabric for her to create with while watching our beautiful children play and create together
... catching up with the extended family
... and finally...
... nachos, skittles & a movie with the smalls. Perfect? Much!